843 - The Native Biodata Consortium: Data Sovereignty For Good
Public Health On Call
The Johns Hopkins Bloomberg School of Public Health
4.6 • 644 Ratings
🗓️ 30 January 2025
⏱️ 15 minutes
🔗️ Recording | iTunes | RSS
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Summary
About this episode:
Since the mapping of the human genome in 2003, scientists have sought data from Indigenous and isolated populations. But often that research doesn't translate into better health care for the groups whose biological specimens informed it. In this episode: all about the Native Biodata Consortium, a research organization that collects, stores, and shares data from indigenous environments and communities.
Guest:
Joseph Yracheta, PĹ«repecha, is a biomedical researcher and the executive director of the Native Biodata Consortium.
Host:
Dr. Josh Sharfstein is vice dean for public health practice and community engagement at the Johns Hopkins Bloomberg School of Public Health, a faculty member in health policy, a pediatrician, and former secretary of Maryland's Health Department.
Show links and related content:
-
Rapid Acceleration of Diagnostics (RADx)—The National Institutes of Health
-
Native Americans Graves Protection and Repatriation Act—National Park Service
- Tribal Data Repository—Data for Indigenous Innovations, Interventions and Implementations
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Transcript
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| 0:00.0 | Welcome to Public Health On Call, a podcast from the Johns Hopkins Bloomberg School of Public Health, |
| 0:05.9 | where we bring evidence, experience, and perspective to make sense of today's leading health challenges. |
| 0:16.3 | If you have questions or ideas for us, please send an email to public health question at jh.h. |
| 0:22.6 | That's public health question at jh.g.u.org for future podcast episodes. |
| 0:31.6 | It's Lindsay Smith Rogers. Today, data from indigenous lands and people. We hear about an effort to make sure that tribal communities benefit. |
| 0:40.3 | Joseph Iricada is a biomedical researcher and doctoral student at the Johns Hopkins |
| 0:44.9 | Bloomberg School of Public Health. |
| 0:46.9 | He's also the executive director of the Native Biodata Consortium, where he works with |
| 0:51.8 | the National Institutes of Health and Tribal Nations. |
| 0:55.1 | He joins Dr. Josh Sharfstein to talk about efforts to advance biomedical research while |
| 0:59.9 | making sure that communities are not exploited in the process. |
| 1:03.8 | Let's listen. |
| 1:04.8 | Joseph Irishada, thank you so much for joining me in Public Health On Call to talk about |
| 1:09.9 | your very, very interesting and important work. Thank you for joining me in Public Health On Call to talk about your very, very interesting and |
| 1:11.8 | important work. Thank you for having me. I'd like to start by asking to introduce yourself to |
| 1:18.5 | our audience. Where are you today recording this podcast and how have you gotten there? |
| 1:24.4 | My name is Joseph Irsheda. I am the executive director of the Native Biodata Consortium, |
| 1:31.3 | which is a 501c3 research organization that houses sample and data within the boundaries and |
| 1:41.4 | legal jurisdiction of an American Indian nation in South Dakota. |
| 1:46.0 | Where are you today? |
| 1:48.0 | I am at my house in South Dakota, Selby, South Dakota. |
| 1:52.0 | Okay. How cold is it up there? |
... |
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