The Jeff Fisher Show

Saturday mornings, 9 to noon Eastern on the Blaze Radio Network.

British baby Charlie Guard.

Passed away.

One week before his first birthday.

He was born on August 4th, 2016, seemingly healthy. They were They took him to London's Great Ormond Street Hospital for children in October, where he remained.

Everyone at Great Ormond Street Hospital sends their heartfelt condolences to Charlie's parents and loved ones at this very sad time.

Do they?

He was diagnosed with Mitrocondrial DNA Depletion Syndrome,

a rare inherited condition that causes muscle weakness and loss of motor skills.

He was the 16th person ever to be diagnosed with the disease.

Through their own research, Charlie's parents, Chris Guard and Connie Yates found a doctor in the United States doing research on an experimental treatment

Then he was willing to treat Charlie the doctor Michio Horano of New York's Columbia University Medical Center

The treatment used as part of Horano's research has only been used on a couple of patients with a less severe form of the

disorder. At the end of January, Charlie's parents launched a go-fundme page to

raise money to bring Charlie to the United States for that treatment. In three months they exceeded 1.65

million dollars. But the hospital stepped in and opposed this effort stating that it was not in the best interest of

their patient. In February the hospital decided based on Charlie status that

treatment was unlikely to benefit

Charlie. This is in February. Unable to agree, the hospital went to court to have a judge decide, hoping to be able to remove Charlie from life support.

In April, the UK High Court ruled that it was in the infant's best interest for his treating clinicians to remove the ventilator keeping him alive.

That decision was then backed by the European Court of Human Rights in June,

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