6: Robert Bellizzi | Saving Sight Through The Corneal Dystrophy Foundation
Care More Be Better: A Podcast For Sustainable Social Impact and Regeneration
Corinna Bellizzi
5 • 1.3K Ratings
🗓️ 3 March 2021
⏱️ 32 minutes
🧾️ Download transcript
Summary
In this episode, since most podcasts “podfade” by episode 7 (and since this is #7 if you count our trailer episode) we honor the podcasts that helped us get started, from the friendly podcasters who offered advice to those who offered air time. A big shout out is due to Carolyn Kiel of Beyond 6 Seconds, Anne Marie Cannon of Armchair Historians and Mathew Passy of Causepods (links to each show are below this intro).
This episode is special in another way. I explore the difficulties experienced by those diagnosed with rare diseases as I interview my father-in-law, Robert Bellizzi. Bob is the Executive Director and Founder of The Corneal Dystrophy Foundation. He started this not-for-profit organization back in 1998 as a grass-roots patient to patient online support group called Fuchs’ Friends. This platform provides resources that did not exist, trailblazing a platform that enabled patients to support one another. Fuchs’ Friends and The Corneal Dystrophy Foundation now serves patients in over 150 countries and has a current membership of approximately 3000.
Guest Website: Corneal Dystrophy Foundation: https://www.cornealdystrophyfoundation.org/
Podcasts Acknowledged: Beyond 6 Seconds, Hosted by Carolyn Kiel: https://www.beyond6seconds.net/
Armchair Historians, Hosted by Anne Marie Cannonhttps://www.armchairhistorians.com/
CausePods, Hosted by Mathew Passy https://causepods.org/podcast/live-well-by-doing-goodwith-corinna-bellizzi-of-the-care-more-do-better-podcast/
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Transcript
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| 0:00.0 | Welcome to Care More Be Better, a podcast for people like you who care about the social impact of conscious companies and everyday heroes. |
| 0:09.7 | Hear inspiring stories from those who put people in planet before profit and personal gain. |
| 0:15.2 | You'll learn how you can make a difference, vote with your dollars, and get involved today. |
| 0:20.1 | Here's your host, Karina Belizzi. |
| 0:24.4 | Hello, fellow do-goaters and friends. I'm your host, Karina Belizzi, a cause marketer and |
| 0:29.3 | activist who's passionate about social impact and sustainability. I want to start the day by |
| 0:34.6 | acknowledging a few podcasters who have helped me on this journey thus far, |
| 0:38.5 | through a few words of encouragement and even introducing some incredible guests. |
| 0:42.8 | Before I recorded my first episode, I got to connect with Carolyn Kiel, host of Beyond Six Seconds. |
| 0:49.1 | She tells stories from people's lives that go beyond the first impression of six seconds. |
| 0:55.5 | She introduced me to DeAndre Wilson, who you meet in episode five, and Rebecca Bastion, founder and CEO of Ointrail, |
| 1:02.0 | a platform that connects women to support one another. And I found a lovely historical podcast, |
| 1:08.5 | Armchair Historians, which is hosted by Anne-Marie Cannon. |
| 1:12.5 | Armchair historians invites guests on to tell their favorite histories and provides deep |
| 1:17.6 | dives into all sorts of interesting histories. Last week, I also got the opportunity to be a guest |
| 1:23.7 | on a couple of podcasts. One of those airs before this show does, so I'll tell you about |
| 1:28.2 | that one. CausePods is a podcast that features podcasts with the cause. There, Matthew Passy invites |
| 1:35.2 | cause-related podcasters on to the talk about their shows. Each episode is brief around 15 to 20 |
| 1:42.2 | minutes, and you get to learn about so very many different causes. |
| 1:46.1 | I encourage you to check all three out, and I'll leave a link to each in show notes. |
| 1:51.4 | Today, we're going to dive into the world of rare genetic diseases as we meet our guest, Robert |
| 1:57.3 | Belizey, the executive director and founder of the Corneal Dystrophy Foundation. |
... |
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