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What Next | Daily News and Analysis

23andMe...And a Looming Data Disaster

What Next | Daily News and Analysis

Slate Podcasts

News, News Commentary, Daily News

4.32.4K Ratings

🗓️ 13 October 2024

⏱️ 29 minutes

🧾️ Download transcript

Summary

How did 23andMe go from the peak of the double-helix to a death spiral? And if it goes under, is all of the genetic data it collected at risk? 


Guest: Kristen V. Brown, staff writer covering health for The Atlantic.


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Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth.


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Transcript

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0:00.0

How many times, Kristen, do you think you have taken a DNA test?

0:11.0

I think that I have quit counting.

0:14.0

That's Kristen V Brown, who covers health for the Atlantic.

0:19.0

I've taken 23 knees tests at least three times.

0:24.0

Ancestry, I've taken all the weird little startup ones that used to be around,

0:31.0

you know, like the one that you fit in a tube and then they printed you a

0:34.0

scarf with your DNA on it. I don't know if you remember that one. From like 2016, 2017 era.

0:42.0

At the height of the home DNA test era, 16-2017 era.

0:43.1

At the height of the home DNA test era, she even tested her cat.

0:47.6

One of Kristen's human tests caused some mild chaos.

0:51.6

Kristen's grandfather was Syrian, but the test concluded that she had

0:54.9

Italian ancestry instead. My aunt, who's a big genealogy enthusiast, she

1:01.9

assumed that it meant someone had lied or there was some family secret but

1:06.8

this was like you know many years ago and at that point there just weren't as

1:11.6

many Arab people in the reference databases,

1:15.4

so they just kind of picked the next closest thing, which is in Italy, you know,

1:19.1

it's kind of over there. So it created a minor family job on.

1:24.0

But other than that, the test didn't tell her all that much.

1:27.0

She had a good chance of having blue eyes, which she has,

1:30.0

a greater than average chance of Celiac disease, which she doesn't.

1:35.0

One thing Kristen does think about is where the data from all those tests went,

1:41.0

and just how much of it is lurking somewhere in a company database or even on the internet.

...

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