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Juicebox Podcast: Type 1 Diabetes

#1641 Lyla's Story

Juicebox Podcast: Type 1 Diabetes

Scott Benner

Type1, Diabetes, Insulin, Medicine, Health, Health & Fitness, Celiac, Cgm, T1d, Nutrition, Parenting, Ardensday, Omnipod, Type1diabetes, Dexcom, Juvenilediabetes

4.71.6K Ratings

🗓️ 1 October 2025

⏱️ 66 minutes

🧾️ Download transcript

Summary

Trigger Warning: John is here to tell us about his daughter, Lyla, who was recently lost to undiagnosed T1D. If you're not prepared to deal with the emotions that are going to come with a raw and honest conversation about losing a child, please consider skipping this episode.

UK Petition: https://petition.parliament.uk/petitions/728677

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Type 1 Diabetes Pro Tips - THE PODCAST

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Medtronic Diabetes

Tandem Mobi **

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Drink AG1.com/Juicebox

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CONTOUR NextGen smart meter and CONTOUR DIABETES app

Dexcom G7

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Get your supplies from US MED  or call 888-721-1514

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*The Pod has an IP28 rating for up to 25 feet for 60 minutes. The Omnipod 5 Controller is not waterproof. 

** t:slim X2 or Tandem Mobi w/ Control-IQ+ technology (7.9 or newer). RX ONLY. Indicated for patients with type 1 diabetes, 2 years and older. BOXED WARNING:Control-IQ+ technology should not be used by people under age 2, or who use less than 5 units of insulin/day, or who weigh less than 20 lbs. Safety info: tandemdiabetes.com/safetyinfo

Disclaimer - Nothing you hear on the Juicebox Podcast or read on Arden's Day is intended as medical advice. You should always consult a physician before making changes to your health plan. 

Transcript

Click on a timestamp to play from that location

0:00.0

John's story is today's guest. He's here to tell us about his daughter, Lila, who was recently lost to undiagnosed type 1 diabetes.

0:10.2

John will share stories about Lila and his desire for this not to happen to someone else's child.

0:17.0

If you're not prepared to deal with the emotions that are going to come with a raw and honest conversation about losing a child, please consider skipping this episode.

0:47.1

While you're listening, please remember that nothing you hear on the Juicebox podcast should be considered advice, medical, or otherwise.

0:54.5

Always consult a physician before making any changes to your health care plan or becoming bold with insulin.

1:02.3

If you're a citizen of the United Kingdom, please consider signing John's petition for funding so all infants are offered type 1 diabetes testing in routine care.

1:08.6

I'll have a link in the show notes and a link at juiceboxpodcast.com if you're interested

1:13.5

in learning more and adding your signature.

1:20.7

Today's episode is sponsored by Medtronic Diabetes and the Contore NextGen blood glucose meter.

1:28.1

Learn more about Medtronics devices at Medtronicdiabetes.com slash juicebox and dig into all

1:36.3

the contour has to offer at contour next.com slash juicebox.

1:53.9

Hi, Scott.

1:55.6

My name's John Storri.

2:20.0

I'm from Kingston upon Hull in England, in Yorkshire, and I am the father of Lila Storri. John, it's nice to meet you. I really do appreciate you doing this with me. Thank you. Yeah, it's right. It's a pleasure to have you here. I'm sorry, I think we're going to probably just jump right in. Any other small talk will, I think, seem trivial very quickly. Why don't you tell me why you're here and what led you to this place?

2:21.6

Right.

2:24.7

Well, the reason I'm here today, and again, thank you for having me on the pod.

2:26.9

Like I said, I've heard a lot of good things about you.

2:27.5

Thank you.

2:29.1

And the Juice Box podcast. And we send our love from across the pond.

2:31.4

But basically, the reason I'm on here today is to

2:34.5

discuss Lila and a beautiful daughter. I do apologize if I get emotional during the pod, because

2:41.8

it is still quite raw, so you might want to come with a trigger warning. Listen, I'm going to cry if you

...

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