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Sickboy

1 in 1,000,000 - X-linked lymphoproliferative (XLP) syndrome

Sickboy

CBC

Society & Culture

4.8524 Ratings

🗓️ 26 August 2018

⏱️ 74 minutes

🧾️ Download transcript

Summary

This conversation is straight up bananas. Aaron is a rare breed. One of the rarest. One of only two Canadians who live with XLP syndrome. A rare and scary disease that can end Aarons life in the blink of an eye. We learn that mono is a herpe. BMT is not a tasty sandwich. The oldest person who has ever lived with XLP made it to 42. Genetics are bonkers. Get ready to have your mind blown wide open.

Transcript

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0:00.0

It's becoming pretty clear that U.S. President Donald Trump is ripping up the political

0:05.3

playbook.

0:05.8

And when it comes to what it all means for Canada, well, as they say, it's complicated.

0:09.8

But our podcast, two blocks from the White House, is a way to make sense of it all.

0:13.8

Join me, Willie Lowry, and senior Washington correspondents, Paul Hunter and Katie Simpson

0:18.6

every week as we break down the headlines from Capitol Hill with a Canadian spin.

0:24.2

Find and follow two blocks from the White House on your favorite podcast app, including YouTube.

0:30.3

This is a CBC podcast.

0:44.6

Hey everybody. it's Taylor here, and I have a huge favor to ask of you.

0:53.4

On September 29th, 2018, I will be riding 130 kilometers for the BMO ride for cancer.

0:55.6

We'll be going from a home bay in Nova Scotia back to Halifax and I'm going to be dedicating this ride to our late great friend,

1:01.5

Brandon Thomas. So my goal, my fundraising goal is $1,000. I'd love to raise much more than that

1:07.8

if possible. I'm shooting for the stars, but the goal is for a thousand

1:10.9

and I'm doing it with the team of guys and everybody's goal is $1,000. And if everybody

1:16.5

listening right now goes over to sickboypodcast.com slash ride for cancer and donates

1:22.5

a dollar or even 50 cents, I'd hit my goal. I'd hit my goal in 10 minutes. So if you could go and do that,

1:29.8

that would really mean the world to me. Again, sickboypodcast.com slash ride for cancer. That's

1:35.2

sickboypodcast.com slash ride for cancer. That's sickboy podcast.com slash ride for cancer.

1:40.2

Thanks, everybody. I love you.

1:50.9

Welcome to Sick Boy, a podcast where we talk about what it's like to be sick.

1:58.5

This week's guest is Aaron, and he has X-linked lympho-proliferative syndrome.

2:01.1

Let's talk about it.

...

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