#003 The Time I Decided to Share

Juicebox Podcast: Type 1 Diabetes

Scott Benner

Type1, Diabetes, Insulin, Medicine, Health, Health & Fitness, Celiac, Cgm, T1d, Nutrition, Parenting, Ardensday, Omnipod, Type1diabetes, Dexcom, Juvenilediabetes

4.7 • 1.6K Ratings

🗓️ 17 February 2015

⏱️ 26 minutes

🔗️ Recording | iTunes | RSS

🧾️ Download transcript

Summary

This episode wasn't easy to research but the end result was a better understanding of how Arden's Day went from a type 1 diabetes advocacy website to the patient blog that it is today. Spoilers, it was a video of Arden describing a low blood glucose induced seizure that revealed the power of transparency and all of the good that comes from not hiding even the ugliest truths about living with type 1 diabetes.

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Blog posts mentioned in this episode:

First post on Arden's Day

Arden describes a seizure

Arden's morning routine video

Transcript

Click on a timestamp to play from that location

0:00.0	This is the Juice Box Podcast episode 3. I'm Scott Benner. Today we are going to delve into the very beginning of my type 1 diabetes parenting block called Arden's Day.
0:24.0	I... Let's see where to start.
0:27.0	Okay.
0:28.0	My daughter Arden was diagnosed with type 1 diabetes a few weeks after her second birthday in 2006.
0:37.0	Just about exactly a year later, I began writing about my experience as a parent of a child who has type 1 online. But I didn't do it the way
0:47.2	you're thinking of it now in 2015. In 2015 you hear somebody say I started a blog and you go of course you did. Everybody has a
0:55.2	blog. I've been told that there are approximately 4,000 personal type 1 diabetes blogs on the internet, which is amazing here in 2015.
1:07.0	But back in 2007, I didn't really know what a blog was. I had never read one, although there were some in existence, there weren't many.
1:17.0	And the only real reason I found blogging was because there was this piece of software on my computer called IWeb.
1:24.0	And IWeb allowed you to put your thoughts down on your computer
1:28.2	and share them online.
1:29.2	And that seemed like something that I wasn't really excited to do, but it seemed like something that I needed to do.
1:36.4	So Arden's Day wasn't called Arden's Day when it started.
1:41.4	It was just, it was just my attempt to reach out to my family and extended friends and my circle,
1:49.8	you know the people that we knew and explain type 1 diabetes. That's all I was looking to do.
1:56.6	If you have type 1 or if you're the parent of a child with type 1, you know exactly what I mean. There's this whole life, this whole kind of microcosmos of diabetes that other people just don't understand.
2:11.0	You know, and I find myself saying it all the time come live at my
2:13.7	house for a week and you'll leave running scared you know like those uh like the
2:20.9	Normies did from the Munster's house, you will run away and have a completely different perspective on what's going on.
2:30.0	So I thought, okay, I'll start telling people about it, but I can't go door to door, you know?
2:36.5	I can't spend my whole day calling people on the phone explaining.
2:39.7	How am I going to get this out?
	...

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