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Finding Genius Podcast

Would You Trade Your Privacy for Information About Your Genome?—Kristen V. Brown—Futures of Health Reporter, Bloomberg News

Finding Genius Podcast

Richard Jacobs

Medicine, Health & Fitness

4.41K Ratings

🗓️ 25 November 2019

⏱️ 19 minutes

🧾️ Download transcript

Summary

We're living in an age of unprecedented access to genomic data; all we have to do is send off a sample of saliva in the mail to a company like 23andMe or Ancestry to get a comprehensive report containing information about our ancestral lineage, diseases we might pass on to our children, and diseases we might develop during our lifetime. There's no question that understanding genomic data affords a great benefit to many people, but there's a tradeoff that's critical to acknowledge, and it's one of privacy. Where does our information go once in the hands of these companies? Can it really be deleted at the press of a button, as we are led to believe?

If you have been under the impression that you have control over your genomic data, even after it's been tested by a company, you aren't alone. Most people don't realize that once a sample of DNA undergoes health-related genomic data analysis, federal law dictates that it must be saved. In other words, it would be illegal for a company like 23andMe or Ancestry to delete it. If this were more widely understood by the public, it might change the frequency and ease with which we hand over our DNA. This might be particularly true if we were more cognizant of the fact that our DNA doesn't just contain information about ourselves, but about those related to us. Kristen V. Brown, reporter with Bloomberg News, joins the podcast to discuss all of this and more, including:

  • What level of control you DO have over your genetic information, and how to exercise it
  • Why there is a federal law against the deletion of certain genomic information and genetic material
  • Where your data is likely to go once you send it to a private company like 23andMe or Ancestry


Transcript

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0:00.0

You're listening to the Future Tech Podcast with Richard Jacobs.

0:09.0

Future Technologies such as Artificial Intelligence,

0:11.8

Stem Cells, 3D printing, gene editing,

0:14.6

Bitcoin, blockchain, the microbiome, quantum computing, virtual reality, and exploring space

0:21.0

are much closer than you might think.

0:23.0

In fact, many early versions of these technologies are in play right now,

0:27.0

and the companies that are using these technologies are the focus of this podcast.

0:31.0

My goal for you, the listener, is to learn from these

0:34.4

podcasts. You may very well learn something that may change the course of your life

0:38.2

for the better. Steer you towards a new career or give you insight into

0:42.4

addressing a thorny medical problem.

0:44.6

Remember, this podcast and its content is informational and nature only.

0:48.6

No medical, tax, legal, financial, or psychological advice is being given.

0:53.0

If you've enjoyed the podcast, please listen, subscribe, like, and tell your friends about it.

0:58.0

Thank you. Hello, this is Richard Jacobs with the Future Tech and Future Tech Health

1:08.5

podcast, Kristen V. Brown, she's a Futures of Health reporter for Bloomberg News. And we're going to be talking about

1:16.2

genomic data and the difficulty of what to do with it once it's quote-unquote out there.

1:21.1

So Kristen, thanks for coming. How you doing? I'm doing great. Thanks so much for having me.

1:26.0

So tell me, what, you know, what have you been reporting on that again in this arena that you want to talk about.

1:32.8

Yeah, so I mean, I think that we're in this really interesting moment, right?

1:38.8

Where the human genome is more accessible than ever.

1:44.7

You know, you can pay $100, send away a tube of your spit

...

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