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TILT Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children

TPP 297: Jennifer Natalya Fink on Disability Lineage — What It Is and How it Impacts Families

TILT Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children

Debbie Reber

Education, Parenting, Kids & Family

4.8983 Ratings

🗓️ 12 July 2022

⏱️ 48 minutes

🧾️ Download transcript

Summary

In this conversation with Jennifer Natalya Fink, we explore the nuances of her fascinating new book, All Our Families: Disability Lineage and the Future of Kinship. The premise of Jennifer’s book is that disability is often described as a tragedy, a crisis, or an aberration, even though more than 1 in 5 people worldwide have a disability. She wanted to explore the question: Why is this common human experience rendered exceptional? Instead, Jennifer is advocating for a reclamation of disability as a history, a culture, and an identity. She is pushing for a world where families see disability in the context of a collective sense of belonging, as cause for celebration, and is a call for a radical reimagining of carework and kinship. We went deep into this idea of a disability lineage, and Jennifer shared what’s at stake if we don’t know and claim our family history. We also discussed why getting a disability diagnosis can be traumatic for families and how it’s accentuated by how our society thinks about disability. Lastly, Jennifer shared her thoughts on making the care system more equitable by embracing disability as a collective experience rather than something individual families have to deal with. *** Jennifer Natalya Fink is director of the Program in Disability Studies and a professor of English at Georgetown University. She is the author of 6 books and founder of the Gorilla Press, a nonprofit promoting youth literacy through bookmaking. Fink is the winner of the Dana Award for the Novel and the Catherine Doctorow Prize for Innovative Fiction, as well as a finalist for the Lambda Literary Award. First and foremost, she is a mother; the transformative experience of parenting her autistic daughter is the center of her work. Things you’ll learn from this episode How Jennifer’s own family story led her to be interested in researching disability and disability lineage What a disability lineage is Why getting a disability diagnosis can be traumatic for families and how it’s accentuated by our society’s views of disability The importance of understanding that care and disability are woven into the human experience What we are losing out on by not knowing our family disability history as families raising differently wired kids How even good-intentioned comments can feed ableist beliefs How we can work to make the care system more equitable, including seeing disability as a collective experience rather than something families must face on an individual basis Resources mentioned for Disability Lineage — What It Is and How it Impacts Families All Our Families: Disability Lineage and the Future of Kinship Jennifer Natayla Fink’s website Jennifer on Instagram Disability Studies at Georgetown University Mia Mingus For more info, visit: https://www.tiltparenting.com/session297 Support the showConnect with Tilt Parenting Visit Tilt Parenting Take the free 7-Day Challenge Read a chapter of Differently Wired Follow Tilt on Twitter & Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices

Transcript

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0:00.0

If you're listening to this podcast, it's probably because a child you love and care for is differently wired.

0:07.0

Are they also struggling in their current educational setting, seen only for what they're doing wrong, while longing for positive relationships with peers and

0:14.8

others?

0:15.8

Envision a world where your child's unique abilities are not just recognized but celebrated.

0:21.0

A world where they can connect with others and their true potential is seen and

0:24.9

appreciated. The Strength-based Assessment Lab's mission is to build a world for your child just

0:30.7

like that. Through its innovative approach that aims to empower students, families, educators, and professionals

0:36.3

to create positive, effective, and collaborative learning experiences.

0:40.2

Be a part of shaping a brighter future for your child.

0:43.0

Visit W.

0:45.0

BGS.ed.

0:47.0

to learn more about what a strength-based assessment could mean for your family.

0:51.0

That's BGS.

0:52.0

E.D.U. Part. family. That's BGS. Edu.

0:54.0

Part of the way we've told a story of family, which is always a combination of fact and

1:01.2

myth, right? When we talk about grandma so and so and

1:05.1

great-grandpa so and so is to excise disability from that family myth.

1:11.1

So every time somebody's diagnosed it's like it's never happened in the

1:15.7

history of the universe before and what I'm trying to do is to explore why that's true, how we would change that, right, and what it would mean for

1:27.8

destigmatizing, valuing, and understanding disability in all our families.

1:33.4

Welcome to Tilt Parenting, a podcast featuring interviews and conversations aimed at

1:41.4

inspiring, informing, and supporting parents raising differently why. and

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