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The Audio Long Read

The high cost of living in a disabling world

The Audio Long Read

The Guardian

Society & Culture

4.32.4K Ratings

🗓️ 10 December 2021

⏱️ 35 minutes

🧾️ Download transcript

Summary

For all the advances that have been made in recent decades, disabled people cannot yet participate in society ‘on an equal basis’ with others – and the pandemic has led to many protections being cruelly eroded. By Jan Grue. Help support our independent journalism at theguardian.com/longreadpod

Transcript

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0:00.0

This is The Guardian.

0:30.8

A time.

0:31.6

It feels as if the disability rights movement won.

0:34.6

After years of groundwork, 1981 was declared the International Year of Disabled Persons.

0:42.0

I was born that year, in Oslo, Norway, and though I did not receive my first diagnosis

0:45.4

of the world's most recent birth certificate, I was born this year in Oslo, Norway, and I did

0:58.0

not receive my first diagnosis of muscular dystrophy until I was a toddler, the coincidences

1:03.6

apt enough.

1:06.0

I was born into a world that was, at last, beginning to recognize this aspect of my

1:12.4

being in it.

1:14.8

Then, from 1983 to 1992, came the United Nations Decade of Disabled Persons, and the Americans

1:25.2

with Disabilities Act, the UK's Disability Discrimination Act, and the UN Convention on the

1:32.1

Rights of Persons with Disabilities.

1:35.8

The turn of the millennium was marked by a litany of good intentions and disavowals of

1:40.4

unequal treatment, by an endorsement, as the first article of the UN Convention has

1:46.0

it, of disabled people's right to, full and effective participation in society on an

1:52.3

equal basis with others.

1:55.0

I came of age in this world, more or less protected by these rights.

2:00.6

In Norway, which produced its own act in 2008, I received an education, found work, and

2:08.7

started a family.

2:10.7

I am writing this as a tenured professor, as well protected as a member of a protected

2:16.0

class can be, and yet I am writing with a feeling, as Tony Soprano had it, that I came

...

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