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Invisibilia

The Fifth Vital Sign

Invisibilia

NPR

Society & Culture, Personal Journals, Social Sciences, Science

4.622.6K Ratings

🗓️ 8 March 2019

⏱️ 61 minutes

🧾️ Download transcript

Summary

We look at how our culture's massive effort to address pain has paradoxically increased it. And we follow one young girl as she struggles through a bizarre and extreme treatment program. NOTE: The treatment in this episode is administered by trained professionals in a hospital setting (and should not be implemented without medical supervision).

Transcript

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0:00.0

Once I was sitting with a hero of mine, an older man who had been part of the civil rights movement and helped bring healthcare to hundreds of poor communities,

0:07.5

but who managed all of his do-gooding with a wicked sense of humor.

0:11.7

He was one of the most prolific and artful cussers I've ever known.

0:17.0

By the time of this meeting, he was in his 90s, so he had a long list of health problems and the pains that go with them.

0:23.0

He was talking about these problems, and they were all very serious.

0:27.0

His back was a mess. A disc had broken loose from the pack and was bulging out so far he could hardly walk.

0:33.0

He'd had cancer and was sure to couple organs, so he carried a bag on his hip to catch his urine, but it sometimes rubbed, making even sitting uncomfortable.

0:42.0

Also his eyes. There was a pressure on his left one. He couldn't see.

0:48.0

I loved this man. I'd known him since I was little, and intellectually I could tell that he was suffering.

0:56.0

The problem was that I had a hang nail. This tiny piece of skin about the size of a grain of rice on the outside of my ring finger,

1:06.0

and it was actually hurting me. A sharp, stabbing sting that completely dominated my attention.

1:14.0

I kept looking at it and the small red patch that surrounded it, so what he was describing was muted and distant, someone talking through a wall.

1:26.0

He had a pain. I had a pain. And what's a hang nail compared to cancer? Nothing. But it didn't matter.

1:35.0

Pain is easy to dismiss in other people, but our own pain has a way of grabbing our attention and holding it like a vice.

1:44.0

When pain takes us, it's hard to turn away.

1:54.0

Welcome to the fifth season of Invisibiliya. I'm Hannah Rosen, and I'm Elise Spiegel.

1:58.0

Invisibiliya is a show about all the invisible forces that shape human behavior, our thoughts, our emotions, our expectations.

2:05.0

And today we have a story about the complicated relationship between pain and attention.

2:11.0

This story starts as a medical mystery, but then it becomes something else. A story not just about one person's pain, but about the pain in all of us.

2:20.0

And how an obscure bureaucratic shift helps transform something as personal and intimate as our own hurt. Stick around.

2:38.0

Okay, so Elise is going to be telling the story today. It begins in a suburban one-story bungalow just outside Phoenix, Arizona.

2:47.0

Just a note, because it involves minors and medical information, we're not going to use last names. Here is Elise.

...

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