The Association for Frontotemporal Degeneration (AFTD) with Esther Kane & Debbie Elkins

All Home Care Matters

Enriched Life Home Care Services

Education, Health & Fitness

5.0 • 88 Ratings

🗓️ 16 July 2024

⏱️ 48 minutes

🔗️ Recording | iTunes | RSS

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Summary

All Home Care Matters and our host, Lance A. Slatton were honored to welcome Esther Kane and Debbie Elkins from The Association for Frontotemporal Degeneration (AFTD).

About The Association for Frontotemporal Degeneration (AFTD):

Online at theaftd.org, AFTD is the largest national nonprofit devoted to providing resources to help families affected by FTD today, and advancing research to foster accurate diagnosis, treatments, and a cure. Our volunteer founded organization – driven by thousands of volunteers and donors – reflects a community's profound determination to #endFTD. With the FTD Disorders Registry, we are proud to partner with families, researchers, biopharma companies, state and federal policymakers, and health professionals across the country to improve care for people and families facing FTD – efforts that could ultimately be importance to all facing dementia or neurodegenerative disease.

About Esther Kane, MSN, RN-CDP:

Esther Kane, MSN, RN-CDP joined AFTD as its Director of Support and Education in November 2020. Previously, Esther served as Director of Wellness at CareOne Management, a company that provides elder-care services throughout the Northeast U.S. She brings clinical, educational, managerial, and marketing skills along with a passion for quality care for those who are living with neurological conditions. Her work reflects a strong commitment to the importance of education and training throughout the spectrum of diagnosis and delivery of quality care.

At AFTD, Esther ensures that support services and educational programs advance early diagnosis and improve access to quality care and effective support, and that that clinical information provided to healthcare professionals and the AFTD community is current and evidence-based.

Debbie Elkins, RN and AFTD Ambassador for West Virginia:

After her husband’s journey to an FTD diagnosis, Debbie became an AFTD volunteer and hosted her first Food for Thought fundraiser. With a passion to raise awareness in her community and to make connections with others in rural areas of West Virginia and southeast Ohio, Debbie was invited to become an Ambassador in 2023.

Working with AFTD staff, she began provider outreach visits hoping to connect the local medical community and others to AFTD. As a registered nurse, Debbie hopes to use her voice to bring FTD awareness to the public, provide education, and point families to the “gold mine” of resources and support that AFTD offers.

Transcript

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0:00.0	Welcome to All Home Care Matters, the show where we discuss all things Home Care, with discussions
0:06.8	on important age-related matters and topics.
0:10.1	Brought to you by Enriched Life Home Care Services, the number one rated home care provider in Michigan by top rated local. Hello and welcome back to all Home Care Matters. If this is your first
0:27.8	time visiting us here at the show we want to say thank you for taking time
0:31.0	out to be with us today.
0:32.6	We appreciate how valuable everyone's time is,
0:35.1	and that's why we try and make each episode here
0:37.0	at all Home Care Matters,
0:38.4	something that will hopefully matter to you.
0:40.6	Today I have the distinct privilege and honor of welcoming two guests from the Association for Frontal Temporal Degeneration
0:47.8	Esther Kane who is the Director of Support and Education and Debbie Al, who is ambassador and family caregiver
0:55.0	for someone living with FTD.
0:58.0	Welcome.
0:59.0	Thank you for having us.
1:00.8	We're happy to be here.
1:02.1	Our pleasure. You know, I really want to start off and again, from the outside, you guys are boots on the ground day to day. Sometimes people hear Alzheimer's, they hear dementia,
1:17.6	FTD, now they're associating it with people like Bruce Willis know came out and acknowledged that he's living with it and his family
1:26.7	What is the association for frontal temporal degeneration can you tell us a little bit about what you're doing and what the mission is?
1:34.0	Yeah, so the Association for Pretual Degeneration which we will call AFTD, we call AFTD,
1:40.7	it is a nonprofit patient advocacy organization specifically focused on
1:46.4	parental temporal degeneration.
1:48.6	AFTD was started over 20 years ago by a care partner who recognized the need for an
	...

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