Summary
Watching his friend cope with a rare liver disease, Dylan Siegel was determined to help. So he set out to raise $1 million for research.
Transcript
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| 0:00.0 | Welcome to Kind World from W-B-U-R Boston. |
| 0:03.2 | I'm Erica Lance. |
| 0:05.0 | Today we have a story of a remarkable friendship and an act of kindness from an unexpected |
| 0:10.0 | source. |
| 0:11.5 | I have to take off my shoe and I break myself and blood comes out. It's my blood sugar |
| 0:17.5 | tester. Sometimes it's kind of like annoying when kids just stare because they just don't know what it's about. |
| 0:25.0 | That's Jonah Pernizarian. His classmates don't fully understand the liver |
| 0:30.3 | disease he has that could be fatal. But Jonah's friend Dylan Siegel |
| 0:35.1 | responds differently. Dylan like he doesn't really stare he just talks to me and |
| 0:40.6 | we just laugh together and it's really fun. |
| 0:46.0 | Dylan is nine years old now, but this story starts three years ago when the boys were in first grade. |
| 0:52.0 | Dylan's mom, Deborah Seackel, |
| 0:54.0 | was driving her son home from Jonah's house |
| 0:56.6 | when she told him that Jonah had a rare condition |
| 0:59.0 | he could die from. |
| 1:00.5 | She explained there was no cure, and doctors needed money to find one. |
| 1:05.0 | I'm like, oh my God, I want to help. |
| 1:07.0 | And I said, great, I love that. |
| 1:09.0 | Do you want to do a bake sale? Do you want to do a lemonade stand? |
| 1:12.0 | He's like, no. |
| 1:13.2 | He looked at me like I was insane. |
| 1:14.7 | What horrible ideas? |
... |
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