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Fresh Air

Parenting A Child With Terminal Cancer

Fresh Air

NPR

Tv & Film, Arts, Society & Culture, Books

4.434.4K Ratings

🗓️ 3 February 2025

⏱️ 49 minutes

🧾️ Download transcript

Summary

Sarah Wildman's daughter Orli died from cancer when she was 14. "She would sometimes ask me, 'What do you think I did to deserve this?' And of course, that's not an answerable question," Wildman says. The NYT Opinion writer spoke with Terry Gross about her daughter's treatment and death and living with grief.

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Transcript

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0:00.0

Hey, it's Robin Hilton from NPR Music.

0:02.6

Many years ago, I helped start the Tiny Desk concert series.

0:05.9

And right now, NPR is looking for the next great, undiscovered musician to perform behind the famous desk.

0:12.5

Think you've got what it takes?

0:13.7

Submit a video of you playing an original song to the Tiny Desk Contest by February 10th.

0:19.0

Find out more and see the official rules at npr.org slash Tiny Desk Contest by February 10th. Find out more and see the official rules at npr.org

0:22.5

slash tiny desk contest. This is fresh air. I'm Terry Gross. Parents want to protect their

0:28.6

children, but how can you possibly protect your adolescent child from a terminal illness and inevitable death?

0:36.2

My guest, Sarah Wildman, realized the inevitability after her older

0:40.5

daughter, Orly, was enrolled in hospice. That was after three years of treatment for a rare form of

0:46.0

liver cancer that had metastasized. Orley was 14 when she died in 2023. She endured several rounds of

0:53.8

chemo, a liver transplant, two brain surgeries,

0:57.0

and a tumor that pinched her spine, leaving her unable to walk. Wildman is a staff writer and

1:02.5

editor for the opinion section of the New York Times, where she wrote several pieces during

1:07.0

Early's illness and after her death, reflecting on what it was like to be a parent of a child

1:12.6

facing mortality and the differences between how hospitals, hospice, and Judaism deal with illness

1:18.7

and death of a child compared to an adult. She described the expert medical care, Orly received,

1:26.0

and the reluctance of some doctors and nurses to speak

1:29.3

openly and realistically about what Orly was facing. She also wrote about the impact on her younger

1:35.6

daughter, Hannah, who was nine when Orly passed away. Several years before Orley's diagnosis,

1:42.1

Wildman wrote the book Paper Love about her grandfather who fled Austria after the Nazi invasion and his girlfriend, who he left behind. No one in the family knew what happened to her, but the book describes how Wildman spent years tracking down the story. She is no stranger to writing about death and the importance of memory, whether it's the memory of an individual child or genocide.

2:04.6

Let's start with a video that Wildman posted on Instagram when Orley was 12 in 6th grade,

...

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