Living With EDS, POTS & a Medical System That Can’t Keep Up
Sickboy
CBC
4.8 • 524 Ratings
🗓️ 15 April 2025
⏱️ 58 minutes
🧾️ Download transcript
Summary
When Gwen first went to the doctor for stomach pain, she didn’t expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it’s like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen’s story is as sharp as it is eye-opening. It’s a reminder that “invisible” doesn’t mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.
Transcript
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| 0:30.2 | This is a CBC podcast. Hello, everyone. |
| 0:44.3 | This week, we dive into a little conversation where we sort of unpack what it would be like to live, you know, half of your life only to realize that your |
| 0:55.1 | body's been gaslighting you the whole time. Gwen is our guest today, and this conversation |
| 1:01.5 | was so fun. We'll follow was a wild ride of overlapping diagnoses, deep, deep medical rabbit holes, and a whole new lens on disability |
| 1:14.6 | and identity. Gwen is very funny. She's brilliant. And throughout the conversation, |
| 1:20.5 | drops knowledge about everything from EDS to the politics of accessibility. And it's one |
| 1:27.2 | of those sick boy conversations that, you know, |
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