Jonathan Cottor Founder & CEO of the National Center for Pediatric Palliative Care Homes (NCPPCH)

All Home Care Matters

Enriched Life Home Care Services

Education, Health & Fitness

5.0 • 88 Ratings

🗓️ 3 October 2025

⏱️ 63 minutes

🔗️ Recording | iTunes | RSS

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Summary

All Home Care Matters and our host, Lance A. Slatton were honored to welcome Jonathan Cottor as guest to the show.

About Jonathan Cottor, MBA, MPH. :

Jonathan Cottor is a devoted father whose journey with his son Ryan, diagnosed with Spinal Muscular Atrophy at 9 months old, profoundly shaped his life. Ryan defied expectations, living an extraordinary 17 years until his death in December 2018. Inspired by their experience, Jonathan and his wife co-founded Ryan House, a pioneering children's respite, palliative, and hospice care home in Phoenix, Arizona.

After a 30-year career in corporate marketing and leadership, Ryan's death became the catalyst for Jonathan to align his work with his passion. He earned a Master of Public Health (MPH) from the Johns Hopkins Bloomberg School of Public Health, specializing in policy and advocacy, along with a certificate in Maternal and Child Health.

Jonathan is now a recognized national thought leader in pediatric palliative care.

He has been instrumental in building a coalition of community-based pediatric palliative care home models, culminating in the creation of the National Center for Pediatric Palliative Care Homes and its flagship initiative, Children's Respite Homes of America.

About National Center for Pediatric Palliative Care Homes (NCPPCH):

The National Center for Pediatric Palliative Care Homes (NCPPCH) is a national nonprofit advancing an innovative solution: local, community-based homes that provide overnight respite, palliative, and hospice care tailored to the needs of medically fragile children and young adults, particularly those with life-limiting conditions.

Transcript

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0:00.0	Welcome to All Home Care Matters, the show where we discuss all things home care with discussions
0:06.7	on important age-related matters and topics. Brought to you by Enriched Life Home Care Services,
0:13.3	the number one rated home care provider in Michigan by Top Rated Local.
0:24.0	Hello and welcome back to All Home Care Matters.
0:26.6	If this is your first time visiting us here at the show, we want to say thank you for taking time out to be with us today.
0:31.7	We appreciate how valuable everyone's time is, and that's why we try and make each episode here at all home care matters, something that will hopefully matter to you.
0:39.9	Today, we are honored to welcome a remarkable man, Jonathan Cotter. Welcome, Jonathan. How are you, sir? Very good. Thank you very much, Lance. It's good to see you this morning. Always good to see you. I know we had a wonderful conversation a couple weeks ago, got to know you,
0:54.9	you know, your story, which you're going to be sharing with our viewers and listeners.
0:58.7	And, you know, I want to just have you take a brief moment and give an introduction of yourself to viewers and listeners who may not be familiar with you.
1:06.6	Sure. Well, I always like to start with saying that I'm a proud dad.
1:10.6	That really the reason
1:11.6	that we're talking this morning is the family journey that our group, our family has had with our
1:16.8	second son, Ryan, who was born with a life limiting disease called spinal muscular atrophy or
1:21.3	SMA. It was a life limiting diagnosis. And he was, when he was born, we started to recognize that he just wasn't developing
1:30.1	as a typical kid would and we had a direct reference because our older son who was two and a half
1:37.8	years older was practically running at the age of 10 months old Ryan was really struggling to sit
1:43.2	up unassisted and hold his head up at eight months old and at nine months old. Ryan was really struggling to sit up unassisted and hold his head up at
1:45.2	eight months old. And at nine months old, we got a diagnosis that put us on a path to
1:50.7	specialists. That got us to a diagnosis of spinal muscular atrophy. This was 24 years ago at this point.
1:57.3	Back in those days, there were no treatments and no cures. And really the news that we were given
2:02.3	was take them home, love them, don't expect them to live to two years old, there's nothing
2:06.3	you can do. And that's really when our world shattered. Professionally, I am a consumer marketer. That
	...

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