How to get a treatment for your toddler’s rare disease

Recode Daily

Recode

Society & Culture, Science, Technology

4.6 • 1.3K Ratings

🗓️ 5 January 2020

⏱️ 29 minutes

🔗️ Recording | iTunes | RSS

🧾️ Download transcript

Summary

The story of a mother's race against time to find a genetic treatment for her son, and the technology that's helping her do it - CRISPR mice from China. Correction - January 8th, 2020: An earlier version of this podcast episode stated that the gene therapy method that’s being developed to treat Maxwell would alter his genetic map. That is incorrect. The gene therapy method in question, which is called AAV9, won’t alter Maxwell’s mutation. We regret the error. Featuring Dan Vergano, BuzzFeed: @dvergano Amber Freed: @Maxs_Milestones Links to resources discussed: This Mom Is Buying Mutant Mice From China To Find A Cure For Her Son’s Rare Genetic Disease Milestones for Maxwell Host: Arielle Duhaime-Ross (@adrs), host and lead reporter of Reset About Recode by Vox: Recode by Vox helps you understand how tech is changing the world — and changing us. Follow Us: Newsletter: Recode Daily Twitter: @Recode Learn more about your ad choices. Visit podcastchoices.com/adchoices

Transcript

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0:00.0	Are you ready to quit smoking? A little support can go a long way.
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0:10.0	Because when you're dealing with a stressful commute, a tough day at work, or a night out with friends.
0:15.2	Your willpower could use a little help now and then.
0:18.1	Nicorette Gumb fights cravings fast to help give more power to your willpower.
0:23.2	Find out more at Nickaret.co. UK.
0:25.6	Nickaret 2 milligram gum contains nicotine.
0:27.7	Stop smoking aid.
0:28.8	Requires willpower.
0:30.0	Always read the label. Hi, come on in.
0:45.0	Come on in.
0:47.6	Amber Freed lives in Denver, Colorado,
0:50.0	with her husband and their two children.
0:52.2	Come inside.
0:54.2	I even were making Christmas cookies today.
0:57.2	I even made a snack for you to take back with you.
1:00.4	Don't forget it.
1:01.1	I'm gonna put it near the front door.
1:03.0	Amber's twins. Riley and Maxwell are two and a half years old. That's Riley
1:07.7	chattering away. And this is Maxwell.
1:11.1	Yeah.
1:12.1	Maxwell!
	...

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