Diana Rose - Is Service-User Research Possible in Mental Health?

Mad in America: Rethinking Mental Health

Mad in America

Anxiety, Mental Health, Benzo, Science, Hearingvoices, Psychology, Antipsychotic, Mentalhealth, Depression, Panicattack, Psychosis, Medicine, Health, Health & Fitness, Psychiatry, Ssri, Antidepressant

4.8 • 201 Ratings

🗓️ 14 September 2022

⏱️ 38 minutes

🔗️ Recording | iTunes | RSS

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Summary

Dr. Diana Rose wears many hats—academic, researcher, service user, and activist. She is a leading figure in user-led research and currently an Honorary Distinguished Professor at the Australian National University. Dr. Rose was previously Professor of User Led Research and Director of the Service User Research Enterprise (SURE) at King’s College. She was also lead in Patient and Public Involvement in several large research programmes at the Institute of Psychiatry, Psychology, and Neuroscience.

Apart from an impressive set of publications, Dr. Rose’s new book Mad Knowledges and User-Led Research is about to hit the markets. In today’s interview, she brings together her vast breadth of experience and depth of knowledge to talk about the challenges service users and survivors of psychiatry face when they take space as knowers and researchers in the Psy-disciplines.

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Transcript

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0:00.0	Welcome to the Mad in America podcast, your source for science, psychiatry, and social justice.
0:14.0	Good morning, everyone, and welcome to Mad in America. This is your host for today, Ayur Dider.
0:19.4	I am an assistant professor of psychology at the
0:21.8	University of West Georgia and a spotlight interviewer for Mad in America. Our guest today is a leading
0:28.3	figure in user-led research, and so we are pretty thrilled to have her. Dr. Diana Rose is currently
0:34.6	an honorary distinguished professor at the Australian National University.
0:38.7	She was also the world's first professor in user-led research, something I didn't know,
0:43.3	while at the Institute of Psychiatry, Psychology, and Euriscience in King's College, London.
0:48.6	Dr. Rose has written numerous, numerous papers in academic journals and book chapters and her new book is coming out.
0:57.6	But what's most important here is that she has always been an activist as well as an academic.
1:03.9	And today we will talk about all of those parts of her work, her life, and her career.
1:09.1	Dr. Rose, welcome to Matt in America.
1:13.0	Thank you. All right. and her career. Dr. Rose, welcome to Mad in America. Thank you. All right,
1:19.9	let's begin. So, all this expertise in service user and survivor research, could you tell us what service user and survivor research is? What's the difference? Well, I think it's everything
1:25.7	from systems like the academy and the voluntary sector and user groups to language, I think it's very important, to individual persons who embody these things.
1:38.6	Everything is done from the user's word standpoint of being both a survivor and a researcher. So it's not
1:49.5	an additive thing. It's not you are a survivor and your researcher, but you are a survivor
1:55.1	and activist. And you use those experiences to inform everything you do. So it's a synthetic thing, not additive thing.
2:03.8	So what are some of the challenges that you face when you do research like this? And you have to
2:08.5	take people's, you know, things we take for granted when it comes to research and question those.
2:13.3	What are some of the challenges that you have faced and like just some of the victories in this kind of research that you've experienced.
2:21.1	I think the worst thing is false welcoming.
	...

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