Among the families caught in between the Israel and Hamas war is the Abuza family.

Amjad Maha and their two daughters, five-year-old sham and three-year-old Julia.

Julia suffers from an extremely rare neurological

disorder called aHC or alternating hemoplasia that causes muscle stiffness,

seizures, and paralysis. Only a thousand cases worldwide have been confirmed. Before the war

Julia managed with medication but AHC is triggered by stimuli like loud

noises and changes in temperature. In a tent in a war zone Julia is today

unable to sit or stand and is running out of medication. A number of families with

children who have AHC have rallied to help Julia.

Among them is Simon Frost, who I spoke with yesterday.

Simon, thank you for being here.

It's good to be here.

Thank you for having me.

So tell us how you came to know about Julia and her family in the first place.

What's the connection there between your families?

So my little girl has alternating hemopledia of childhood and so does Julia.

We're pretty close in a community in AHC and we have a Facebook page

where everybody communicates because parents become quite expert in this disease

and tend to consult each other on what's working and what's not working for their kids

So I came across the family through there

Your little girl is named Annabelle right? She's eight years old. is. How is she doing? She's doing okay, but she has

episodes at least a few every week. So it's nothing like what Julie is facing, but

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