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The New Yorker Radio Hour

A New Approach to Dementia Care

The New Yorker Radio Hour

WNYC Studios and The New Yorker

Politics, Arts, News, Wnyc, Books, David, Storytelling, Society & Culture, Yorker, New, Remnick

4.26.2K Ratings

🗓️ 30 April 2019

⏱️ 19 minutes

🧾️ Download transcript

Summary

In the field of memory care, there is a fierce debate around the question of honesty. Lying can, under certain circumstances, alleviate or avert distress in patients who are suffering from memory loss. But, on principle, many providers, patients, and family members don’t like the idea of deceiving patients who are in such a vulnerable position. Some care homes have strict no-lying policies. But the New Yorker staff writer Larissa McFarquhar recently spent some time at a different kind of assisted-living facility that takes the opposite approach—The facility is one of only a few of its kind in the United States." The Lantern, in Chagrin Falls, Ohio, is home to about forty patients who suffer from dementia and Alzheimer’s disease. The care staff at the Lantern are taught that, in some cases, lying to patients is kinder than telling them the truth. McFarquhar talks with Andrea Paratto, who helps train the Lantern’s staff. In a previous job, at a facility where lying to patients was against the rules, she had to remind a ninety-year-old woman that her mother was long dead. “She just started crying,” she tells McFarquhar. “I stopped right then and there and said I’m never doing that again. I cannot put somebody through that ever again.” Some people argue that lying to patients undermines their dignity. But when it comes to patients struggling with dementia, McFarquhar says, there are other factors to consider. “Maybe something else should be the goal—I don’t know. Happiness? Autonomy? Or living your life as you want to, insofar as that’s possible.”

Transcript

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0:00.0

From One World Trade Center in Manhattan, this is the New Yorker Radio Hour, a co-production of the New Yorker and WNYC Studios.

0:10.3

This is the New Yorker Radio Hour. I'm David Remnick. If you've had any experience caring for a family member or a loved one who's losing their memory, you don't need me to tell you just how painful it can be

0:22.6

for everybody involved.

0:24.6

That experience is going to become more and more familiar

0:27.6

as the number of people living with Alzheimer's disease

0:30.6

in this country continues to rise.

0:33.6

But the thinking about how to care for such patients

0:36.6

is also starting to evolve.

0:38.9

Staff writer Larissa McFarcker recently spent some time at a new kind of assisted living facility for memory care patients,

0:46.2

one of only a few like it in the United States.

0:49.3

The place is called The Lantern, located in the Cleveland suburb of Shagrin Falls, Ohio. It houses around

0:56.8

40 residents who have some form of dementia or Alzheimer's. Okay, let's go for a walk.

1:04.0

Let's take a little walk. Should we hold hands? Yeah. okay.

1:14.7

Erna and I were walking down a wide hallway,

1:18.0

and it had been designed to look like a street in a small American town of maybe 75 years ago.

1:22.2

The floor was covered in carpeting,

1:24.6

kind of green, modeled with a darker green

1:27.4

that made it look a little

1:28.4

bit like grass. And there was daylight coming in from skylights. And then between the skylights,

1:34.0

there were light panels that were painted to look like sky. The illusion was surprisingly

1:39.3

effective. It didn't fool you exactly. You didn't feel as though you were actually outdoors,

1:44.4

but it alleviated the claustrophobia

...

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