What time do you get up, Marley?

4 a.m.

Did you always wake up before you?

No, actually, for most of my life, I barely slept.

Because I had this thing called pain-somnia that, I think, me and my wife coined.

When you have so much pain that you can't sleep.

Why did you have so much pain?

I had a disease called sickle-cellany.

I had a disease called sickle-cellany.

I had a disease called sickle-cellany.

I had a disease called sickle-cellany.

It's like a succession of time bombs.

Because first your splint goes, then your gold bladder, then your hips,

and all your organs are in jeopardy.

And aside from that, there's the cornerstone of pain that you have to live with, nonstop.

Lots and lots of pain.

Jimmy Olaher lives in Atlanta, where he works in e-commerce.

But he's originally from Nigeria, which has one of the largest

sickle-cell disease populations in the world.

And around four to six million people.

In the United States, around 100,000 people have sickle-cell disease.

So we classify it as a rare disease.

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